MPS Run

The National MPS Society's LA Run is one of over 20 runs nationwide. Started in 2001, when there was no treatment available for any child with an MPS or ML disorder. Most all children died before adulthood from the devastating effects of this disease. Since the start of the WALK & RUN L.A. our hard work and determination has seen enzyme replacement therapy treatment become available to children affected with MPS1, MPS6 and MPS2. But sadly, children affected with ML, MPS3, MPS4, and MPS7 are still without treatment, but not without hope! The money raised from this event and all our nationwide runs, funds research and hope. Please join us in making the hope, a reality!

The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases.

Since 1974 the Society has supported individuals and families affected with MPS and related diseases. We also are governed by a member-elected volunteer Board of Directors, many of whom are parents of children with MPS. We benefit from the expertise of a Scientific Advisory Board, comprised of world-class physicians, researchers and medical professionals throughout the world.

The Event is a 5K race and 1 mile family fun walk to heighten public awareness and raise money to fund research. Although there is currently no cure for MPS, research is making great strides. Carrier detection, the development of replacement enzymes, and the possibility of gene therapy are among today's research themes and treatment options. Bone marrow and cord blood transplantation have been considered successful for many, though relatively few individuals qualify for this high-risk procedure. We've made major advancements in research thanks to the fund raising efforts.

When you Donate to the National MPS Society you can be sure that you’re being associated with an organization that holds the highest ethical and financial standards.

The National MPS Society has again received a four star ration from Charity Navigator, America's premier independent charity evaluator. According to Charity Navigator, "The National MPS Society has earned our third consecutive four-star rating for its ability to efficiently manage and grow its finances. Only 8 percent of the charities we've rated have received at least three consecutive four-star evaluations, indicating that the National MPS Society outperforms most charities in America in its efforts to operate in the most fiscally responsible way possible. This exceptional designation from Charity Navigator differentiates the National MPS Society from its peers and demonstrates to the public it is worthy of their trust."